Down Syndrome, From Gut Punch To Gratitude

Have you ever been hit really hard in the stomach?   It is a terrible mixture of pain and the lack of ability to breathe.   This is what it felt like the first time I got a good look at my fourth child when she was born.

My wife had a great delivery and I was the proud father with the camera recording.   Our new baby girl cried and the nurses quickly whisked her over to clean her off.  That’s when I saw her face the first time, that is when I felt the gut punch.  Immediately I knew in my heart that my new daughter was different.  With her little swollen face and her protruding tongue it was clear to me that she had Down syndrome.  I knew the second gut punch would be coming in just a few seconds.  The second gut punch would hurt worse than the first.  It would come when they brought my new baby back to my wife.  My wife is a nurse and I knew that right away she would see what I was seeing.

She held our sweet baby and looked at her and I saw her reaction as she felt the gut punch as well.   She said with a quiver in her voice,  “It looks like she has Downs.”  That day, over 4 years ago is still very vivid in my mind.  It was a hard day.

There are some scenarios that happen to other people but you never think they will happen to you…

And then they do.

We were now parents of a little girl named Joy who had Down syndrome.  The initial shock passed quickly and we realized that Joy was a gift from God perfectly knit together in her mother’s womb.  She was no accident.   God gave us a little treasure that would change our future and the future of our family and extended family.

Fast forward to present day.

Our little Joy is such a bright light in this world.   I look forward to her hugs and excitement every morning.  She has made us all more caring, accepting and generally happier.

She touches lives all over the world with her smile and charisma.   She is funny, happy, determined, opinionated and oh so caring.

To be real honest Down syndrome is not something we think about that much in our family.  Joy is just part of our lives.  She is just like all of our other children.  Some things take her longer to learn but every milestone she hits is a mighty accomplishment that our family celebrates.

The day that Joy was born I shed a lot of tears for the loss of the child I thought I was getting.  I cried because there were so many unknowns about the future.  I still have tears come to my eyes on a regular basis but it is for different reasons.  I have tears of Joy in my eyes.  I have such gratitude and thankfulness to God that he would entrust my family with such a precious gift.  I have tears that well up when I think about just how much love and value Joy adds to so many lives.  Who am I that God would entrust with one of His most precious treasures?

Our family wants to help the world understand that Down syndrome is not a sentence to a life of misery but a sentence to a life of love.   We want to spread awareness of the great abilities of the precious people in this world who happen to have Down syndrome.

If you have read this far then you must care about Joy and about children like her.  Today is World Down Syndrome day and I want to tell you about one little boy who has Down syndrome named Justin that you can help.

Justin is an awesome little guy who lives in an orphanage in China.  He doesn’t have a family to love him.   He does have a family that wants him.   Some very dear friends of mine are doing all they can to adopt Justin and bring him home.  They need help to do this.   International adoption is very expensive and they are trying to raise the resources to bring Justin home.   Would you consider, on this special day making a real difference in the life of one little boy who has Down syndrome.   If you can give to help with this adoption it would mean the world to this family and to Justin.  Here is the link to the Go Fund Me Page.

https://www.gofundme.com/7fvje8-we-are-adopting

Also if you could share this blog and help raise awareness for this need it would be greatly appreciated.Screen Shot 2018-03-21 at 9.00.23 AM.png

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